|
|
 |
|
|
|
 |
| |
|
|
| Dear Texas NF Supporter: |
|
January 2008
|
We all have our reasons for getting involved with the foundation, for what ever the reason, I thank you and more importantly, our patients thank you for your support!
Since the very first time I heard the words, "Neurofibromatosis" I have fought hard for answers and have relentlessly tried to be an advocate for my daughter. It has not been easy to hear that there, "is no treatment or cure for NF." However, I believe the foundation is arming our families with the knowledge and hope that a cure can be found, and treatment options are a real possibility!
I urge you to continue to give to further these efforts. Texas has such a rich history in medical research and I am proud to be a small part in it's advancements. As president I promise to do all I can. But I need your help. This month I will be traveling to Washington D.C. to to lobby Congress for continued research money. It is never too late to write your congressman. It takes such little time to participate in making this dream a reality.
HERE'S WHAT YOU CAN DO:
Write a letter to your congressmen or senator asking for continued research funding.
Volunteer your time
Make a general donation or Send an NF patient to NF Family Camp:
Sincerely,
Susan Johnson
President
Texas Neurofibromatosis Foundation
|
|
|
|
|
|
|
|
LEGAL AND PRIVACY STATEMENT ·
CONTACT US |