The NF Young Adult Leadership Program is an opportunity for NF-affected young adults to learn effective advocacy skills and speak directly to policymakers about NF. The 5-day program is the first of its kind, allowing young adults to make a difference in the NF community. 

Program priorities are to create leaders, advance research, and bring new voices to the forefront of advocacy. In addition to NF’s clinical impacts, young people with NF are faced with the common and often elevated challenges of young adulthood. Yet, resources for this group are virtually nonexistent.

Together with Littlest Tumor Foundation and NF Midwest we created the NF Young Adult Leadership Program to help NF youth develop critical leadership skills, advocate for NF solutions, educate Congress, and advance NF research.

This five-day program includes workshops with leadership experts and mentors, meetings with Congressional leaders in DC, visits to all 435 Congressional offices, and the NF Congressional Briefing.

Become a leader today!


The 2021 Program will be June 7-11, 2021
in Washington, D.C.

Scholarships available to qualified applicants.

Age requirement is 18-30 years.

Click HERE to apply