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Join us for an opportunity to build your leadership skills, advocate for vital NF research, and meet other young adults impacted by NF!
In addition to NF’s clinical impacts, young people with NF are faced with the common and often elevated challenges of young adulthood. Yet, resources for this group are virtually nonexistent. We created the NF Young Adult Leadership Program to help NF young adults develop critical leadership skills, advocate for NF solutions, educate Congress, and advance NF research.

This five-day program includes workshops with leadership experts and mentors, meetings with Congressional leaders in DC, visits to all 435 Congressional offices, and helping facilitate the NF Congressional Briefing.

Become a leader today!


This year’s program will take place from January 8-12, 2024.

Click HERE to apply

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