The Texas Neurofibromatosis Foundations Privacy and Legal Policy

The mission of the Texas Neurofibromatosis Foundation is to be committed to meeting the needs of people challenged with Neurofibromatosis by providing care, comfort, support, information, education, funding and other resources for its treatment, prevention, and eventual cure. The Texas Neurofibromatosis Foundations website provides information, resources and referrals to assist patients with Neurofibromatosis. The website also offers opportunities for volunteering at Texas NF fundraising events and to make a contribution. Our privacy policy applies to the Texas Neurofibromatosis Foundation website only and is provided to help you understand the measures we take to protect your financial and personal information.

Information Collection and Use

The Texas Neurofibromatosis Foundation takes safeguarding your privacy seriously and is the sole owner of the information collected on this site. We will not sell, share or rent this information to others in ways other than those outlined in this statement. Personal information provided by users such as name, address and payment information may be collected for the purpose of responding to specific questions, activities and events or contributions made to the foundation. A secure server is set up for your online contributions. Your information will not be disclosed without the user’s permission unless necessary to provide services which the user has requested, or as needed by law.


This website contains links to other sites. Please be aware that the Texas Neurofibromatosis Foundation is not responsible for the privacy practices of such sites. We encourage our user to be aware when they leave our site to read the privacy statements of every website that collects personally identifiable information.

Legal Requirements

We may release your personal information to third parties to comply with legal requirements such as law, regulation, search warrant, subpoena or court order; or in special cases, such as a physical threat to you or others. In the event that we are legally compelled to disclose your personal information to a third party, we will attempt to give you prior notice unless doing so would violate the law or court order, so that you can contest the disclosure.

Medical Disclaimer

You acknowledge that the information on the website is provided “as is” for general information only. It is not intended as medical advice, and should not be relied upon as a substitute for consultations with qualified medical professionals who are familiar with your individual medical needs.


Our privacy and legal notice is subject to change without notice. Please check the web page periodically for updates and revisions.


For any questions or inquiries please call 972-739-6086  or fill out the following form:

OUR MISSION: The Texas NF Foundation is committed to meeting the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.



320 Decker Drive, Suite 100

Irving, TX 75062

Office: 972-739-6086 or 877-515-TXNF

Fax: 972-739-6087

EIN: 74-2138345

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© 2020 by The Texas Neurofibromatosis Foundation. All Rights Reserved.

This project was supported by

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