Texas NF Foundation is part of the Leadership Council of NF Network Advocacy Program, which is leading the national Neurofibromatosis advocacy program working to secure federal funds for neurofibromatosis research.  The program consists of several NF patient advocacy organizations coming together as one voice on Capitol Hill educating congress on the importance of funds for NF research.  The program is advised by a Leadership Council and attended by NF patient organizations and individual participants. 

For the past 24 years, During Hill Visit days, the NF Network Advocacy Program stomped the halls of congress with strong NF advocates educating congressional offices about the importance of federal funding for NF research.  Advocates participating in this program have been the voice of the NF community on Capitol Hill for 24 years, and have been instrumental in generating over $600 million dedicated to NF research. 


Learn more about the Department of Defense Congressionally Directed Research Program


For any questions or inquiries please call 972-739-6086  or fill out the following form:

OUR MISSION: The Texas NF Foundation is committed to meeting the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.



320 Decker Drive, Suite 100

Irving, TX 75062

Office: 972-739-6086 or 877-515-TXNF

Fax: 972-739-6087

EIN: 74-2138345

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© 2020 by The Texas Neurofibromatosis Foundation. All Rights Reserved.

This project was supported by

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