Texas NF Foundation is part of the Leadership Council of NF Network Advocacy Program, which is leading the national Neurofibromatosis advocacy program working to secure federal funds for neurofibromatosis research. The program consists of several NF patient advocacy organizations coming together as one voice on Capitol Hill educating congress on the importance of funds for NF research. The program is advised by a Leadership Council and attended by NF patient organizations and individual participants.
For the past 24 years, During Hill Visit days, the NF Network Advocacy Program stomped the halls of congress with strong NF advocates educating congressional offices about the importance of federal funding for NF research. Advocates participating in this program have been the voice of the NF community on Capitol Hill for 24 years, and have been instrumental in generating over $600 million dedicated to NF research.
Learn more about the Department of Defense Congressionally Directed Research Program