WHAT IS NEUROFIBROMATOSIS?

Neurofibromatosis (nu-ro-fi-bro-ma-tóe-sis), or NF, is a little-known genetic disorder that primarily affects the growth of neural (nerve) cells. NF is the most common neurological disorder caused by a single gene. This causes tumors to grow on nerves and produce other abnormalities such as skin changes and deformities. But NF may affect almost any organ of the body. It occurs equally in both men and women, in all races and ethnic groups. 50% of NF patients inherit the disease from a parent and 50% will result from a spontaneous genetic mutation with no family history of NF. Because the symptoms are varied, uncertain, and progressive, NF is hard to define or picture.

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EMAIL US

For any questions or inquiries please call 972-739-6086  or fill out the following form:

OUR MISSION: The Texas NF Foundation is committed to meeting the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.

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CONTACT US

320 Decker Drive, Suite 100

Irving, TX 75062

Office: 972-739-6086 or 877-515-TXNF

Fax: 972-739-6087

EIN: 74-2138345

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© 2020 by The Texas Neurofibromatosis Foundation. All Rights Reserved.

This project was supported by

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