OUR OUTREACH
Our Patient Outreach Program sends out informational packets and brochures to patients, families, physicians and educators to further public knowledge of NF. We distribute newsletters to update NF families on research efforts and support programs and current activities of the Foundation. We provide referrals to physicians and clinics around the state of Texas that specialize in the care of NF patients. We participate in many of the clinics by visiting in person, taking the opportunity to meet new NF families, and educate them on the services we provide.
We also refer patients to social and community associations that can help with specific symptoms of the disease. We organize patient support gatherings across the state, such as the Neurofibromatosis Symposium and the NF Family Camp. We also administer various and specific financial assistance funds for NF patients, such as the John D. Wagner and Elisabeth R. Wagner college scholarship fund for anyone wanting to seek higher education, and the Peter Lowry travel assistance fund for medical visits. For more information contact Patient Outreach.