NEUROFIBROMATOSIS or NF
Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.
NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.
Currently there is no cure, no long-term treatments nor any prevention for NF.
The Texas Neurofibromatosis Foundation® a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.
Our mission is to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.
There are many ways you can help!
PARTICIPATE. ADVOCATE. DONATE.
people are born with NF each day
1 in 3,000
have no family history of NF
PROGRAMS & EVENTS
October 24, 2022
Charles Lowe Texas NF Golf Classic
Join us for the Charles Lowe Texas NF Annual Golf Classic! 100% of the net proceeds raised from the golf tournament go directly towards medical research and other supportive endeavors to assist those affected by NF.
December 11, 2022
Cookies with Santa - Dallas
Cookies with Santa is a magical experience designed to appeal to children of all ages but especially for our youngest friends. NF patients, families and friends can celebrate the holidays with festive crafts, holiday music, caroling, cookies, hot cocoa and of course, a visit and pictures with Santa.