NEUROFIBROMATOSIS or NF
Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.
NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.
Currently there is no cure, no long-term treatments nor any prevention for NF.
The Texas Neurofibromatosis Foundation® a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.
Our mission is to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.
There are many ways you can help!
PARTICIPATE. ADVOCATE. DONATE.
people are born with NF each day
1 in 3,000
have no family history of NF
PROGRAMS & EVENTS
April 18, 2021
Dining Out in Dallas
Dining Out in Dallas: Dine In & Tune In - a virtual event to celebrate over 25 years of this amazing event. Join Master of Ceremonies, Scott Murray, along with host chefs Samir Dhurandhar, Executive Chef of Nick & Sam's, founding chef, David Holben and our special Jr. Chef, Sasha.
September 23, 2021
North Texas Giving Day
For 40 years, we have worked to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy, and funding of research for a treatment, prevention, or cure.
NF Awareness Month
May is National NF Awareness Month. Join us and others across the country in showing your support for the more than 2 million people worldwide living with NF. Your efforts to help educate others about the disorder gets us one step closer to finding treatment and a cure for NF!