NEUROFIBROMATOSIS or NF
Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.
NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.
Currently there is no cure, no long-term treatments nor any prevention for NF.
The Texas Neurofibromatosis Foundation® a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.
Our mission is to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.
There are many ways you can help!
PARTICIPATE. ADVOCATE. DONATE.
people are born with NF each day
1 in 3,000
have no family history of NF
PROGRAMS & EVENTS
September 10-12, 2021
Texas NF Family Camp
Join us for the Texas NF Family Camp 2021! Texas NF has been offering an NF Family Camp to our patients and their families for thirty years. Camp is a great time for patients to learn, laugh and make meaningful relationships with new NF friends while growing closer to their own families.
September 23, 2021
North Texas Giving Day
For 40 years, we have worked to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy, and funding of research for a treatment, prevention, or cure.
October 25, 2021
Charles Lowe Texas NF Golf Classic
Join us for the Charles Lowe Texas NF Annual Golf Classic! 100% of the net proceeds raised from the golf tournament go directly towards medical research and other supportive endeavors to assist those affected by NF.