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STRONG 

FAMILIES.

STRONG 

SUPPORT.

STRONG 

PATIENTS.

NEUROFIBROMATOSIS or NF

(nu-ro-fi-bro-ma-tóe-sis)

Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.

NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.

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Currently there is no cure, no long-term treatments nor any prevention for NF.

Make

Things Happen.

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OUR MISSION

The Texas Neurofibromatosis Foundation®  a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.

 

Our mission is to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure. 

 

There are many ways you can help!

PARTICIPATE.  ADVOCATE.  DONATE.

120

people are born with NF each day

1 in 3,000

affected worldwide

50%

have no family history of NF

PROGRAMS & EVENTS

August 5, 2022
Roughriders Baseball

Join us for a fun night of baseball and fireworks as the Frisco Roughriders take on the Amarillo Sod Poodles at Riders Field in Frisco, Texas!  

September 22, 2022
North Texas Giving Day

Support the Texas NF Foundation and make a positive impact for NF patients and their families on North Texas Giving Day 2022!


September 9-11, 2022
Texas NF Family Camp

Join us for the Texas NF Family Camp 2022! Texas NF has been offering an NF Family Camp to our patients and their families for thirty years.

October 24, 2022
Charles Lowe Texas NF Golf Classic

Join us for the Charles Lowe Texas NF Annual Golf Classic! 100% of the net proceeds raised from the golf tournament go directly towards medical research and other supportive endeavors to assist those affected by NF.

FOLLOW US
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GIVE WHILE YOU SHOP
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