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STRONG 

FAMILIES.

STRONG 

SUPPORT.

STRONG 

PATIENTS.

NEUROFIBROMATOSIS or NF

(nu-ro-fi-bro-ma-tóe-sis)

Neurofibromatosis is the most common neurological condition caused by a single gene, and it affects one out of every 2,000 births. Currently there is no cure, no long-term treatments or any prevention for NF.

NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.

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Start

Currently there is no cure, no long-term treatments nor any prevention for NF.

Make

Things Happen.

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OUR MISSION

The Texas Neurofibromatosis Foundation®  a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this condition.

 

Our mission is to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure. 

 

There are many ways you can help!

PARTICIPATE.  ADVOCATE.  DONATE.

120

people are born with NF each day

1 in 2,000

births affected worldwide

50%

have no family history of NF

PROGRAMS & EVENTS

September 19, 2024
North Texas Giving Day

Support the Texas NF Foundation and give with purpose to make a positive impact for NF patients and their families on North Texas Giving Day 2024!

December 15, 2024
Cookies with Santa - Dallas

Cookies with Santa is a holiday fundraiser and magical experience for the whole family! The event is designed to appeal to children of all ages but especially for our youngest friends. NF patients, families and friends can celebrate the holidays with festive crafts, holiday music, ice-skating, caroling, cookies, hot cocoa and of course, a visit and pictures with Santa.

October 19, 2024
NF Symposium

The Annual NF Symposium is an informational meeting for patients, their families, educators, and caregivers affected by NF. The Symposium is a full day program designed to address many of the endless concerns of NF.

FOLLOW US
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GIVE WHILE YOU SHOP
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