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STRONG 

FAMILIES.

STRONG 

SUPPORT.

STRONG 

PATIENTS.

NEUROFIBROMATOSIS or NF

(nu-ro-fi-bro-ma-tóe-sis)

Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.

NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.

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Currently there is no cure, no long-term treatments nor any prevention for NF.

Make

Things Happen.

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OUR MISSION

The Texas Neurofibromatosis Foundation®  a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.

 

Our mission is to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure. 

 

There are many ways you can help!

PARTICIPATE.  ADVOCATE.  DONATE.

120

people are born with NF each day

1 in 3,000

affected worldwide

50%

have no family history of NF

PROGRAMS & EVENTS

December 3, 2022
Cookies with Santa - Houston

Cookies with Santa is a holiday fundraiser and magical experience for the whole family! The event is designed to appeal to children of all ages but especially for our youngest friends. NF patients, families and friends can celebrate the holidays with festive crafts, holiday music, caroling, cookies, hot cocoa and of course, a visit and pictures with Santa.

March 6. 2023
Charles Lowe Texas NF Golf Classic

Join us for the Charles Lowe Texas NF Annual Golf Classic! 100% of the net proceeds raised from the golf tournament go directly towards medical research and other supportive endeavors to assist those affected by NF.

December 11, 2022
Cookies with Santa - Dallas

Cookies with Santa is a holiday fundraiser and magical experience for the whole family! The event is designed to appeal to children of all ages but especially for our youngest friends. NF patients, families and friends can celebrate the holidays with festive crafts, holiday music, ice-skating, caroling, cookies, hot cocoa and of course, a visit and pictures with Santa.

April 26, 2023
Dining Out in Dallas

Dining Out in Dallas: Battle of the Chefs. Join Master of Ceremonies, Scott Murray, along with founding chef, David Holben and our special Jr. Chef, Serenity.  “Dining Out in Dallas” has been celebrating culinary collaborations with the most creative chefs from the finest restaurants in Dallas.

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GIVE WHILE YOU SHOP
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