NEUROFIBROMATOSIS or NF
Neurofibromatosis is the most common neurological condition caused by a single gene, and it affects one out of every 2,000 births. Currently there is no cure, no long-term treatments or any prevention for NF.
NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.
Currently there is no cure, no long-term treatments nor any prevention for NF.
The Texas Neurofibromatosis Foundation® a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this condition.
Our mission is to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.
There are many ways you can help!
PARTICIPATE. ADVOCATE. DONATE.
people are born with NF each day
1 in 2,000
births affected worldwide
have no family history of NF
PROGRAMS & EVENTS
March 4, 2024
Charles Lowe Texas NF Golf Classic
Join us for the Charles Lowe Texas NF Annual Golf Classic! 100% of the net proceeds raised from the golf tournament go directly towards medical research and other supportive endeavors to assist those affected by NF.
April 17, 2024
Dining Out in Dallas
Dining Out in Dallas: Battle of the Chefs. Join Master of Ceremonies, Scott Murray, along with founding chef, David Holben and our special Jr. Chef, Jonathan. “Dining Out in Dallas” has been celebrating culinary collaborations with the most creative chefs from the finest restaurants in Dallas.