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STRONG 

FAMILIES.

STRONG 

SUPPORT.

STRONG 

PATIENTS.

NEUROFIBROMATOSIS or NF

(nu-ro-fi-bro-ma-tóe-sis)

Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.

NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.

 

Currently there is no cure, no long-term treatments nor any prevention for NF.

Make

Things Happen.

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OUR MISSION

The Texas Neurofibromatosis Foundation®  a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.

 

Our mission is to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure. 

 

There are many ways you can help!

PARTICIPATE.  ADVOCATE.  DONATE.

120

people are born with NF each day

1 in 3,000

affected worldwide

50%

have no family history of NF

PROGRAMS & EVENTS

May 2021
NF Awareness Month

May is National NF Awareness Month. Join us and others across the country in showing your support for the more than 2 million people worldwide living with NF. Your efforts to help educate others about the disorder gets us one step closer to finding treatment and a cure for NF!

September 10-12, 2021
Texas NF Family Camp

Join us for the Texas NF Family Camp 2021! Texas NF has been offering an NF Family Camp to our patients and their families for thirty years. Camp is a great time for patients to learn, laugh and make meaningful relationships with new NF friends while growing closer to their own families.

June 25, 2021
Roughriders Baseball

Join us for a fun night of baseball and fireworks as the Frisco Roughriders take on the San Antonio Missions at Riders Field in Frisco, Texas!  



September 23, 2021
North Texas Giving Day

For 40 years, we have worked to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy, and funding of research for a treatment, prevention, or cure.


FOLLOW US
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GIVE WHILE YOU SHOP
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