NEUROFIBROMATOSIS or NF

(nu-ro-fi-bro-ma-tóe-sis)

Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.

NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.

 

Make

Things Happen.

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OUR MISSION

The Texas Neurofibromatosis Foundation®  a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.

 

Our mission is to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure. 

 

There are many ways you can help!

PARTICIPATE.  ADVOCATE.  DONATE.

PROGRAMS & EVENTS

August 29, 2020
NF Symposium

The Annual NF Symposium is an informational meeting for patients, their families, educators, and caregivers affected by NF. The Symposium is a full day program designed to address many of the endless concerns of NF.

October 2020
Texas NF Golf Classic

Join us for the Texas NF Annual Golf Classic! 100% of the net proceeds raised from the golf tournament go directly towards medical research and other supportive endeavors to assist those affected by NF.

September 11-13, 2020
Texas NF Family Camp

Join us for the Texas NF Family Camp 2020! Although this year's camp will look and feel different than years passed, we are dedicated to give our patients and families an incredible VIRTUAL experience. You'll learn, laugh, and connect with others to create meaningful relationships with new NF friends while growing closer to your own families.

September 17, 2020
North Texas Giving Day

For 40 years, we have worked to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy, and funding of research for a treatment, prevention, or cure.

FOLLOW US
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GIVE WHILE YOU SHOP
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EMAIL US

For any questions or inquiries please call 972-739-6086  or fill out the following form:

OUR MISSION: The Texas NF Foundation is committed to meeting the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.

STAY CONNECTED

CONTACT US

320 Decker Drive, Suite 100

Irving, TX 75062

Office: 972-739-6086 or 877-515-TXNF

Fax: 972-739-6087

EIN: 74-2138345

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© 2020 by The Texas Neurofibromatosis Foundation. All Rights Reserved.

This project was supported by

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